Workshop Health Data and Health Data Space 2023
IDHEAP, Lausanne
8 June 2023
Introduction (9h00 – 9h15)
Session 1 (9h15-10h15) – Between privacy and data flow: data altruism as a (relevant) legal solution?
- Teodora Lalova-Spinks, The application of data altruism in clinical research through empirical and legal analysis lenses
- Paola Aurucci, The interplay between Data Altruism Consent and GDPR
Coffee break (10h15-10h45)
Session 2 (10h45 – 12h00) – Digital health solutions from users’ and experts’ perspective
- Maéva El Bouchikhi, Benefits and ethical issues of Internet of things for occupational health
- Stefan Stepanovic, Acceptable nudge strategies to incentivize the use of wearables and physiolytics at work: A Q-methodology examination
- Teodora Lalova-Spinks, Investigating patients’ knowledge, preferences, and perspectives about data protection and data control in health
Lunch, Geopolis Building (12h-13h30)
Session 3 (13h30-14h30) – Organizational and regulatory tools in the digital health domain
- Anouk Verhellen and An Jacobs, The Digital Health Data Mapping Methodology: practical guidelines to visualize digital health dataflows and infrastructures
- Sophie Weerts, Regulatory Sandboxes and digital health: a means of promoting innovation or protecting individual rights?
Coffee Break (14h30-15h00)
Session 4 (15h00-16h15) – Health monitoring: actors and narratives
- Dylan Hofman, FemTech and reproductive rights – what about the promised empowerment of users?
- Alexandre Bretel, The impact of algorithmic health monitoring on patient responsibility
- Mélanie Levy, Solidarity – A new paradigm in health data sharing? Between profits and precision public health
Closing remarks (16h15-16h30)
Apero at the Perchoir, Vortex Building (17h-19h)